Update and more:

Once again, Kyler is doing really well after getting his Factor on Monday. He's completely back to his normal self. He won't sit still though. He wants to do it all right now. Keith and I are having a hard time getting him to just crawl. We want him to crawl for a month and then start working on more stuff, but he has other things in mind. He wants to stand up on everything. He climbs us, on toys, the wall of his pack-n-play when he's in it, etc... We try to tell him to slow down and just enjoy crawling, but he doesn't listen to us. =)

We still haven't heard back from the genetics testing. They said 1-3 months, possibly more. It's been almost 2 months. If I was an obvious carrier, I think we would've heard by now. Genetics is so tricky, I wouldn't doubt that if I am a carrier, it's going to be a tricky one to find.

Kyler and Reese have started playing together now. It's so cute. Kyler will sit there and Reese comes up to him to give him a kiss. She'll lay down in front of him and he throws his hands out in front of her like he's going to chase her. She jumps back and then leans in to give him another kiss. He moves towards her and she jumps back. This goes on and on. He's going after her toys and she sits in front of him and taunts him a little bit. It's hilarious. We're in trouble when those two start teaming up!!

So all of these bleeds Kyler has gone through have been somewhat hard on us, as I'm sure you all can imagine. I decided that I needed to reach out to talk to someone. It's another Hemophilia Mom who's been through what I'm going through. She is wonderful. She's helping me with my doubts and helping me realize that we're doing everything we can for Kyler. She told me how we need to approach the nurses and doctors when we go to the ER. Getting Kyler's Factor ASAP is our main priority. He needs that first. Before they run any tests, before they try to diagnose him, if we know he needs Factor, we need to put our foot down and make sure they get the IV in and give it to him right away. If that means having our Hematoligist on the phone when we get there, that's what we do. We also need to insist that they don't wrap him up like a little burrito. He can lay in one of our laps and they HAVE to listen to us when we tell them where his good veins are. She and I had a great conversation and it's so wonderful knowing I have another person to talk to when I need her.

I have to tell you, the last month and a half with these three bleeds has been very trying. I had it in the back of my mind that maybe they made a mistake. I tried not to get my hopes up, but I couldn't help it. I was induced a week early, so maybe his blood wasn't fully developed. It's been hard seeing him in pain and knowing I was wrong. The hardest part is knowing that besides jabbing a needle in him, usually multiple times, there's nothing Keith or I can do to help him. He's in pain and that's so hard to see. It breaks my heart when those beautiful blue eyes are looking up at me wondering why I'm letting someone hurt him more. He doesn't understand that it's going to help him. Talking to this other mom is helping me to know that it will get better. Someday we'll be able to infuse him at home. And even someday after that, he'll be able to infuse himself. It's just going to be a little tough until we get there.

I keep telling myself, he only has Hemophilia. It could be so much worse. Keith and I are strong. God wouldn't have given Kyler and us anything we couldn't handle. I think I've mentioned this before, but I heard once that before babies are born, they sit down with God to pick their parents. I'm so happy Kyler picked us. We lucked out!

I hope you're all doing well.